I have been sick for over 7 years. In 2008 the GI doctors dx me with Celiac and said good news don't eat bread and you will be fine! That was not true - even though I went on an immediate strict GF diet I continued to get sicker. I lost my gallbladder due to being so malnourished and ill 7 months later. From there things got worse. I continued to stay GF and try to get better. To no avail. Finally in Oct of 2012 they determined I have colitis with ischemia but told me not to worry about it as it's mild. Problem was my symptoms were far from mild. It had gotten to the point I couldn't leave the house, I had "symptoms" several times a day and I dealt with extreme stomach pain. The dr threw some medicine my way every 3 to 4 weeks and said try this and come back in a month. Finally I found a dietitian who was willing to help me try to get better. Through her and the SCD diet I've gotten where the "symptoms" are minimal though the pain is still there. I've been working with her for about 2 months now. I am seeing progress but she's still concerned about the pain and the fact car rides make my symptoms show up again. So she's recommending back to the GI dr as well. So that is where I am at. I am learning now that studies are being done saying that going GF is often not enough for celiacs and by ignoring the fact I was so sick the doctors actually allowed more damage to be done. I want to learn everything I can about the GI disorders I have and share my knowlege that I gain. I think it's important to become your own advocate and to make sure you are doing what you can to make yourself healthy!
August 14th will be five months since my bacteria transplant! So far so good! I think as far as bowel movements go, those have pretty much evened out. I still have 2-3 rough days a month (but compared to NO GOOD DAYS EVER this is fine!). I am still struggling a bit with tolerating foods and have gone back to my nutritionist. She is referring me to an integrative medicine nutritionist to help me from here. So I will let you know how that goes.
Along this journey though I've realized that healing is so much more than food. It's about healing your mind, body and spirit. I have found that as I became more and more ill I let other things go. I quit going to church. I quit having fun. I felt my whole life revolved around food and what it was doing to me. I also did not take in...
Just wanted to keep everyone in the loop. I am having good bowel movements and pain has gone down considerably since the transplant. Eating doesn't seem to be causing issues but I'm still on SCD phase 2/3. I am slowly introducing new foods each week but it could be a while before I am on a complete SCD diet.
The issues is still having urgency which is weird because not having the diarrhea that goes with it. Just can't hold on to get to a bathroom. I have been struggling with this for weeks and FINALLY decided to call GI doctor.
He thinks due to the swelling he was seeing on my last colonoscopy that I am still having that and that may be causing the issue. So gave me some enemas (Fun stuff) to try to reduce swelling. If it works then we know that's the issue and can focus on...
I bet you thought I had the transplant was cured and disappeared :) Nope still here! I am still doing well but not 100% - no cure yet. I'm still waiting on that one!
I am still having low to medium urgency (especially when I have to get in a car but some of that may be anxiety) and pain and tiredness. Dr and Dietitian both assure me it's normal and that I am looking at 3-6 months minimum before I can even expect to know if this transplant "cures" the colitis and "bad bacteria" issues.
So I am no longer seeing vast amounts of healing or signs of getting better - pretty much just still having 4's on the Bristol Chart but nothing else has changed all that much since my last posts.
The hardest part right now is the emotional side of all this and the waiting to...
Wow it's been three weeks so far. It's funny how three weeks seems so long to me because it's been years since I've gone that long with minimal issues!
I have to say this bacteria transplant was definitely a good thing for me. I found out from my GI doctor that he infused the bacteria with a solution of Ultimate Floramax which is what gave me a trillion bacteria organism in my gut!
This treatment has stopped the constant diarrhea and definitely has put me on a path towards healing rather than where I was which was the complete opposite of healing! However one thing I want to make clear is this - I do not believe this treatment alone was what got me here. I believe there have been multiple steps taken with the doctor and my dietitian including the transplant that put me on a...
Wow this week flew by! I have to say after being so sick for so long it's a little weird to be having some normal days. It's like having to figure out all over again, who I am - without the constant illness.
Anyhow, I have been hitting the right areas on the bristol chart and haven't had any stomach issues (diarrhea and such) for 2 whole weeks now. It's amazing!
I do still get really tired in the afternoon and I have a constant soreness in my upper abdomen and mild pain after bowl movements in my lower abdomen.
I saw my doctor today. My biopsies came back good and he said no new colitis popped up. He said that he felt the transplant was going to take since I've seen such good results already. Said to stay on probiotic and SCD diet until I heal more. Then can discuss moving...