I have been sick for over 7 years. In 2008 the GI doctors dx me with Celiac and said good news don't eat bread and you will be fine! That was not true - even though I went on an immediate strict GF diet I continued to get sicker. I lost my gallbladder due to being so malnourished and ill 7 months later. From there things got worse. I continued to stay GF and try to get better. To no avail. Finally in Oct of 2012 they determined I have colitis with ischemia but told me not to worry about it as it's mild. Problem was my symptoms were far from mild. It had gotten to the point I couldn't leave the house, I had "symptoms" several times a day and I dealt with extreme stomach pain. The dr threw some medicine my way every 3 to 4 weeks and said try this and come back in a month. Finally I found a dietitian who was willing to help me try to get better. Through her and the SCD diet I've gotten where the "symptoms" are minimal though the pain is still there. I've been working with her for about 2 months now. I am seeing progress but she's still concerned about the pain and the fact car rides make my symptoms show up again. So she's recommending back to the GI dr as well. So that is where I am at. I am learning now that studies are being done saying that going GF is often not enough for celiacs and by ignoring the fact I was so sick the doctors actually allowed more damage to be done. I want to learn everything I can about the GI disorders I have and share my knowlege that I gain. I think it's important to become your own advocate and to make sure you are doing what you can to make yourself healthy!
So it has been one week! I can say that for most of my BM's I am hitting 4's on the Bristol Stool Chart thought I've had few 1's in the past couple of days mixed in there. Which is way better than I was because before I was at the other end of the chart and never had normal BMs.
It's been an emotional week. Trying to not be so worried all the time and focus on the positives is harder than I thought. You would think you would just be ecstatic that you are doing better but it is not quite that easy!
Overall I have to say this last week has been pretty amazing. I feel better than I have in a long long time, I have more energy and my symptoms are returning to normal. Still experiencing some pain in my abdomen but the doctor said give it another week. So I hope this is the...
So last night my husband went through the positives I've experienced so far because it's so hard not to get frustrated that I am not better instantly. However he did have a point - I've had normal BM's, been able to leave the house and have a little more energy than I used to as well as color in my face again. It was helpful to go through these things so that I don't get frustrated that I am not immediately healed. I need to remember this is a process and the bacteria transplant was just step one.
Today I have felt better than I have since this started. The pain level is decreasing and my symptoms are staying normal. The only "complaint" if you will is I am still very wore out - however I spoke to the doctor today and he said that is to be expected as my body has a lot of work to...
Well Thursday will actually be a week but for this blog I counted that as day 1. Either way - here's the latest update if you are following this....
Later on yesterday I started having a sour stomach and the pain in my abdomen (upper) increased. I am super worried - what if this doesn't work? It's hard waiting to see. Every little pain or symptom I have I am questioning. My husband is watching me like a hawk and I have no clue what to tell him.
Yesterday was my first day back to work. I made it from 9 am to 4 pm with an hour lunch. However my pain increased quite a bit and by 4 pm I was wiped out completely. I ended up resting for the rest of the night and kept a heating pad on my stomach to ease the pain.
Finally I tried some greek yogurt around 9 pm because the sour...
Well good news is I finally had a BM! woo hooo.... anyhow it was normal and the pain with it was medium. My stomach still hurts and a little bit more now that I had a BM but overall I am doing well.
Still fatigued but able to function so that's good news.
I'll keep you updated :)
Okay time for a quick update. Still no BMs which is starting to freak me out - but I'm trying to be patience as I know Imodium used to stop me up for days in the past before the colitis -so maybe that is why no BMs?
Otherwise - pain is down and bloating and gas is gone. I have color in my face again and feel better than I have in a long time. Just hope it's not a placebo effect :)
I was able to go out today for about 2 hours - went to some stores. The pain still gets worse when I drive but otherwise no issues.
I still get tired really quick and feel drained at the end of the day thought. Maybe still healing?
Who knows?? I am just trying not to get to optimistic yet and just see how this all plays out.
thanks for keeping in touch with me on this!!!